Combating albinism challenges in Africa, tackling health and social discrimination
- Tenzin Dorjee
- Mar 27
- 3 min read
Albinism is a genetic condition characterised by the absence or reduction of melanin, leading to distinct physical features and visual impairments. While it is a relatively rare condition, occurring in approximately 1 in 17,000 people in Europe and North America, its impact varies significantly across different regions. Africa, in particular, presents a stark contrast in how people with albinism experience and manage their condition.
In Europe, the lack of pigmentation associated with albinism often goes unnoticed due to lower levels of sunlight. However, in Africa, where sun exposure is intense, the absence of melanin can lead to severe skin issues, including burns, lesions, and, if untreated, skin cancer. The lack of adequate healthcare and sun protection in many African regions exacerbates these health risks, contributing to premature mortality among individuals with albinism.
Beyond the physical health challenges, people with albinism in Africa face severe social discrimination. Historically, individuals with albinism were subject to rejection and ostracism, but in recent years, they have become the victims of horrific violence driven by superstition. Some communities believe that body parts of individuals with albinism bring good fortune, leading to abductions, mutilations, and killings. This violence, rooted in ignorance and superstition, highlights the urgent need for both medical and social intervention.
To address these disparities, Beyond Suncare ORG has initiated a comprehensive programme aimed at improving the lives of people with albinism in Africa. Their holistic approach focuses on preventing skin cancer and promoting social inclusion through the "Beyond Protection Package". This package includes a range of services such as sunscreen distribution, education, and awareness campaigns, particularly in remote and underserved areas.
Since its inception in 2011, Beyond Suncare ORG has collaborated with the Ministry of Health of Tanzania to develop Kilisun, a skin cancer prevention initiative. The "Beyond Protection Package" is a scaled-up model of this programme, designed to be easily replicable across different African communities. The package is implemented with the support of local dermatologists, schools, and community platforms, ensuring broad reach and effectiveness.
Key achievements of the programme include:
- 3,500 beneficiaries across three countries receive free services.
- 57% of beneficiaries are children, underscoring the programme’s focus on younger populations.
- 75% of services are provided by local dermatologists, prioritising those in rural and remote areas.
The initiative not only provides critical medical care but also addresses the social stigma faced by people with albinism. By raising awareness and fostering community support, Beyond Suncare ORG aims to reduce discrimination and improve the quality of life for individuals affected by albinism.
Connecting this effort to UN Global Goal 10, which focuses on reducing inequalities, the work of Beyond Suncare ORG exemplifies how targeted interventions can bridge the gap between different regions and improve the lives of marginalised groups. By addressing both the health and social challenges faced by people with albinism, the organisation contributes to a more equitable and inclusive world, aligning with the broader goal of reducing inequalities within and among countries.
Addressing albinism in Africa requires a multifaceted approach that encompasses both medical and social dimensions. The efforts of Beyond Suncare ORG are crucial in mitigating the health risks and combating the pervasive discrimination faced by individuals with albinism. Their work serves as a vital step towards achieving greater equity and inclusion for all.
Sources:
More information: https://beyondsuncare.org
Youtube credits: https://www.youtube.com/@wechooseunity